Congenital Database – History

The European Congenital Heart Surgeons Foundation (Association since 2003) established in 1992, created the European Congenital Heart Defects Database (ECHDD), precursor of today’s EACTS Congenital Database.

The ECHDD was supervised by Martin Elliott and based at the Great Ormond Street Hospital For Sick Children, London, UK.

In 1998 the ECHDD was moved to, for legal and logistical reasons, the Department of Cardio-thoracic Surgery, Children’s Memorial Health Institute, Warsaw, Poland under the responsibility of Bohdan Maruszewski.

Simultaneously since 1994 the substantial amount of work was done within the European Association for Cardio-Thoracic Surgery (EACTS) on establishing the EACTS Database named European Cardiothoracic Surgical Registry.

In September 1999 during the EACTS Annual Meeting in Glasgow the final decision was made that ECHDD would become a part of the EACTS Database Project. At the same meeting an International Nomenclature for Congenital Heart Surgery was officially adopted; this was the outcome of one year work of the International Nomenclature and Database Committees for Congenital Heart Disease of both EACTS and the American Society of Thoracic Surgeons (STS).

Over the course of eight meetings at several venues on both sides of the Atlantic, in 1998 and 1999, an International Nomenclature and Database Committee met with 36 experts from the membership of the EACTS, STS, AATS, AHA associated surgeons and cardiologists from the United States, Canada, Australia and Europe.

The results of the International Nomenclature for Congenital Heart Surgery included the Minimum Data Set of 21 items and the lists of 150 Diagnoses, 200 Procedures, 32 Complications, as well as 28 extra cardiac anomalies and 17 preoperative risk factors.